Hair Loss Organizations

The following list includes non-profit or consumer organizations related to hair loss that are currently recognized by The American Hair Loss Association. It’s important to note that while there are several trade organizations in this field that may be non-profit, their objectives are often more aligned with creating business opportunities for their members, rather than focusing on hair loss sufferers and consumer needs.

The American Academy of Dermatology

The American Academy of Dermatology is the largest, and most representative of all dermatologic associations. With a membership of over 13,700, it represents virtually all practicing dermatologists in the United States. While the AAD is not specifically a hair loss organization they do support the furthering of hair loss awareness and have many hair loss experts in their membership.

International Alliance of Hair Restoration Surgeons

The International Alliance of Hair Restoration Surgeons is a consumer organization that selectively screens skilled and ethical hair transplant surgeons. The IAHRS does not offer an open membership policy to doctors practicing hair transplantation and is the only group that recognizes that all surgeons are not equal in their skill and technique. Its elite membership seeks to represent the best in the discipline, the true leaders in the field of surgical hair restoration. The IAHRS’ goal is to provide a safe place for prospective patients to choose a surgeon based on skill and not on their ability to buy public opinion through advertising.

The International Alliance of Hair Restoration Surgeons (IAHRS) is the only organization in the world whose membership is limited exclusively to state-of-the-art hair restoration surgeons. The IAHRS is the patient’s advocate, the ethical physician’s voice, and the standard for the profession.

National Alopecia Areata Foundation

The mission of the National Alopecia Areata Foundation (NAAF) is to support research to find a cure or acceptable treatment for alopecia areata, to support those with the disease, and to educate the public about alopecia areata.

The mission is accomplished by:

  • Funding research and research workshops that add to the scientific knowledge about alopecia areata, its causes, and different treatments
  • Providing local support and education for people with alopecia areata and their families
  • Informing the public about alopecia areata
  • Advocating the concerns of people affected by alopecia areata
  • Creating and distributing educational materials to health professionals as well as those affected, so that all may better understand alopecia areata.

The Bald Truth

Airing live from CBS studios in Los Angeles, and heard coast to coast, Spencer Kobren’s The Bald Truth is the only radio program that openly deals with the emotional, and societal difficulties faced by men and women suffering with hair loss. Kobren’s weekly on-air support group has been nationally syndicated for more than 8 years, bringing to light how emotionally devastating living with hair loss can be in today’s appearance-obsessed society. Whether you’re new to hair loss or have been suffering for 20 years, Spencer Kobren’s The Bald Truth is your safe place to learn about effective hair loss products and treatments and to openly share your thoughts, your humor, your hope, and your strength with others struggling with this silent epidemic.

The Women’s Hair Loss Project

Established in 2007, The Women’s Hair Loss Project is a dedicated community that brings together women facing the challenges of hair loss. With a legacy spanning over a decade, our organization has been a source of support, encouragement, and empathy for women navigating the complexities of hair loss. Led by founder “Y,” our platform facilitates heartfelt conversations with women who openly share their personal journeys, triumphs, and struggles related to hair loss. Additionally, we extend the conversation by welcoming medical and alternative hair professionals to provide valuable insights, fostering greater education and awareness about hair loss. Our mission is to offer understanding and support to women coping with hair loss while breaking the barriers of misunderstanding and isolation surrounding this often-overlooked disorder. Join us on this empowering journey as we strive to create a community that champions education, awareness, and unity.

Children’s Alopecia Project

The goal of the Children’s Alopecia Project is to improve the lives of children suffering from any form of Alopecia by: Funding a children’s support group i.e., a place where they can go and feel supported and comfortable discussing their difficulties and coping mechanisms in dealing with their disease. Raising money to send children who might not be able to attend the annual conference of the National Alopecia Areata Foundation (NAAF) Donating monies for research on a regular basis, promoting public awareness through community-based events.

Rapunzel Project

The Rapunzel Project is a non-profit organization dedicated to helping chemotherapy patients keep their hair during treatment. Funds raised by The Rapunzel Project will be used for two related purposes: first, to create awareness that hair loss during chemotherapy can be prevented through the use of specialized cold caps, and second, to purchase specialized freezers, cold caps, and related equipment to facilitate this process.